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Showing posts with the label Jesse's Journey

Day 1.... The start of my Big Trek for Isaac

  Today is day one of training for my Fastest Known Time (FKT) on the Thames Valley Trail, in 25 weeks I will be heading out on the 110 km trail with the goal to finish it in under 12 hours ( actually I would really like to finish it in 11 hrs and 30 mins but that feels scary to say out loud). Why am I starting on this very long training cycle to run a pretty long distance? There are several reasons, the one that is most important to me is to do something big in honour of my son Isaac and his trek with Duchenne Muscular Dystrophy.  This run and the journey to it, is my opportunity to share the experience and impact of Duchenne Muscular Dystrophy (DMD).   DMD is a neuromuscular disease that causes all types of muscle cells to be weak and breakdown when used because their cell membrane is missing an important structural protein dystrophin. Over time the muscle is destroyed and cannot be repaired, it is replaced by fat cells and water.  DMD primarily affects boys a...